International Diabetes Association. Useful diabetes contacts in Russia
Are you facing diabetes and don't want to fight alone? Russian diabetic association offers help, but how realistic is this in our country?
Organizations for uniting patients are not popular in Russia, however, the RDA has existed for more than 20 years. What does the association do, and is it possible? future activities, or is this absurd?
As soon as a person is faced with an increase in the glycemic index, the question of treating diabetes mellitus arises by itself. Based international forums, and interregional meetings, the RDA describes algorithms for the treatment of diabetes and recommendations for self-control, which is inevitable in diabetes.
Medical schools of diabetes, companies producing medical equipment for measuring blood sugar and . All new diagnostic and treatment tools are subject to association research.
RDA advocates the ideology of a complete cure for diabetes, and therefore closely monitors changes in the pharmacological market.
![](https://i2.wp.com/diabet-expert.com/wp-content/uploads/2018/08/rossiyskaya-diabeticheskaya-assotsiatsiya-znaet-o-.jpg)
Before you treat
Sometimes the state of hyperglycemia is temporary, so RDA helps prevent the onset of diabetes in the population by offering preventative options. This applies not only healthy people, but also in patients with gestational diabetes mellitus. Timely assistance with glycemic disorders is half the success.
Communication with patients is maintained through several channels:
- feedback form;
- forum;
- Vkontakte community;
- hotline phone number.
For those who have not encountered diabetes before, RDA can become a kind of lifeline.
Note! Timely seeking help is a guarantee that the disease will not be taken by surprise.
![](https://i1.wp.com/diabet-expert.com/wp-content/uploads/2018/08/beremennye-zhenschiny-s-diabetom--bolshe-chem-dva-.jpg)
Research and scientific base
The association itself is not involved in research, but actively attracts researchers. RDA contributes to science in a different way, through funding research in the field of diabetology.
Association employees often participate in medical forums dedicated to diabetes and endocrinology. Members of the association are certified specialists in the field of endocrinology, authors scientific articles, members of the Russian Academy of Sciences.
The goal of the RDA was not the invention of new drugs, but a contribution to the popularization of those methods that are not promoted by advertising. Research into new ways to diagnose and treat diabetes is also on the association's list of goals.
Stepping away from medicine
Research is being conducted not only in relation to medicines and equipment. The Company uses its resources to verify quality food products for patients with diabetes.
![](https://i1.wp.com/diabet-expert.com/wp-content/uploads/2018/08/sekrety-diety-retseptov-i-prigotovleniya-patsienty.jpg)
Who knows
The most important task which the Diabetes Association has undertaken is to spread awareness about diabetes in social sphere. Propaganda proper nutrition and sports activities are the focus, since these criteria are the most basic in .
If a person has just learned about his diagnosis, then he is faced with a lack of understanding of how to live further. Blood sugar levels are labile and it is impossible to immediately reduce them. The public is not aware of the problems of diabetes, and RDA promotes knowledge among the healthy population - this is an important goal.
Adults
To achieve its goals for adults, RDA uses several ways:
- Publishing a newspaper on behalf of the association. Issues are available to registered participants as they are distributed by region.
- Holding holidays and public events. Here we are not talking about internal corporate events, but about large-scale events involving patients. Thus, patients with diabetes receive recommendations not only first-hand, but also exchange real-life experiences.
- Awards from the association. The RDA badge of honor is awarded to active fighters against Diabetes, for example, endocrinologists. It should be noted that not only doctors, but also artists, actors, businessmen, marketers, etc. take part in campaigns to combat diabetes.
- Electronic support. A forum has been created on the basis of the RDA, where problems, new trends in the field of treatment, recommendations on nutrition and lifestyle are freely discussed. Also, employees and patients communicate in in social networks in diabetes association groups and communities.
- Contact phone number. It is not open 24 hours a day, however, there is the possibility of consulting patients.
![](https://i1.wp.com/diabet-expert.com/wp-content/uploads/2018/08/assotsiatsiya-pomogaet-vsem-vne-zavisimosti-ot-voz.jpg)
Children
RDA is actively trying to influence employees working with children. These are schools and health camps. Sports events and sanatorium-resort holidays are organized for children with diabetes. The organization cares for schoolchildren, coming up with ideas for holding a health day in educational institutions.
In addition to direct work on the ground, the RDA negotiates with the Ministry of Education as a whole, which takes the organization to a higher level.
Note! Children are not psycho-emotionally protected from attacks from peers due to illness, so participation in active life, among people like them, has a positive effect.
Teenagers
Teenagers are the most vulnerable group patients because transitional age, aggravated by dissatisfaction with oneself. Some of them are forced to stay in hospitals due to lack of sugar compensation. Special attention However, adolescents are not given the same treatment; work with them is carried out as with children or adults.
Teenagers can also participate in sports competitions, visit resorts and communicate with each other at organized meetings.
![](https://i2.wp.com/diabet-expert.com/wp-content/uploads/2018/08/u-podrostkov-svoe-videnie-problemy.jpg)
Parents
The RDA project supports not only those who have diabetes, but also those who care for patients with such a diagnosis. Many parents seek advice on caring for children and receive answers from professionals, people who are qualified and knowledgeable.
Patients and lawyers
For some patients diabetes mellitus it is necessary to undergo a medical expert commission and obtain a certificate of disability. Paperwork is not an easy task, so the association advises patients on legal issues.
Financing
Funding an organization requires attention because they have to survive. Low fees for patients with diabetes are making themselves felt, however, the association is not giving up and is actively looking for sponsors. Commercial organizations associations are also paid for membership, so they amazingly It remains to stay afloat every now and then by cutting costs.
One of the missions of the RDA is to attract sponsors. Considering the activities of the organization, external support is very necessary.
![](https://i0.wp.com/diabet-expert.com/wp-content/uploads/2018/08/stranno-chto-organizatsii-rabotayuschie-vo-blago-b.jpg)
What's next?
While RDA is leading active work on the global, national and regional level However, the community is clearly on the brink due to insufficient funding. The activities of this organization are not only in the hands of charitable sponsors, but also of members who have joined the community.
Note! The minimum contribution of 10 kopecks is not the limit; you can help the association simply by donating a larger amount.
Scale of the organization
Despite the small headquarters, which have to be cut down every now and then, the organization works in the regions, cooperates with doctors, and pays for lectures. Thus, the newspaper is published in nine regions, Scientific research are carried out on the basis of a number of research institutes, and famous media actively cooperate.
The problem is that the number of patients suffering from diabetes is many times greater than the capacity of the RDA.
![](https://i0.wp.com/diabet-expert.com/wp-content/uploads/2018/08/v-zagranichnoy-poezdke-pasport-diabetika-mozhet-pr-404x480.gif)
Is the organization really working?
The organization works and recruits patients, marketers, researchers, medical professionals and volunteers for a variety of tasks.
It’s easy to make sure that the organization is working – buy it. Many products have RDA verification symbols, namely an image of the association’s logo in the form of a dome divided into two parts (the abbreviation RDA is on the right, and a quarter of a sunflower is on the left).
Pitfalls of RDA
The Russian Diabetes Association is not the only organization for helping diabetics, there are six of them in the country, but nevertheless they are all united by the Russian Diabetes Federation (RDF).
Those who look at the vastness of the World Wide Web for the first time may have a lot of questions, because the data on RDA is different. This is due to the fact that there are two RDA organizations, so as not to get confused, we present data about them in the table.
Despite the differences, the activities of one and the other organization are similar in nature, and the tasks are also almost the same.
The activities of local public organizations are more transparent and accessible, therefore in the article we're talking about exactly about her. The importance of OOIO cannot be diminished, since they have the same resources. Both organizations publish news on the website, provide progress reports and continue to engage in activities.
The only thing that can be said for sure is that the municipal educational organization works more with people, especially with those who are directly related to diabetes (regional representatives of the RDA, doctors, teachers).
To be or not to be RDA
![](https://i1.wp.com/diabet-expert.com/wp-content/uploads/2018/08/borotsya-s-diabetom-mozhno-tolko-vzyavshis-za-ruki.jpg)
In Russia, patients rarely communicate with each other outside the walls of the hospital, and it is humiliating to advertise the disease - these are the established principles. At the same time, patients with diabetes should understand that communicating with qualified specialists is important.
Showing children that they are not alone is necessary. Only these methods can defeat diabetes. The feasibility of the existence of RDA is determined only by patients; the more people who apply, the better.
As soon as a doctor makes a disappointing diagnosis of diabetes, most people either do not attach due importance to it or fall into deep depression. All this happens due to a lack of knowledge in the field of this disease.
Although there is now enough information to various resources, but sometimes a person lacks basic support from loved ones or friends. Many even limit communication, again due to their incompetence and, partly, pity.
A positive role for social adaptation in this case, numerous societies of patients with diabetes mellitus play a role in helping patients with diabetes. They are usually organized on the basis of a medical institution. Volunteers also take part in them. The main goal of such a society is to provide information and medication assistance to newcomers, as well as to promote the prevention of diabetes.
Currently, patient education at the Diabetes School is considered mandatory in the treatment of any type of disease. As a result of training, a person receives vital knowledge for further successful coexistence with the disease, and to join the Society of Diabetes Patients. And also receives answers to questions:
- Why control blood sugar?
- How to control it: using proper diet, taking pills or insulin, physical activity?
- How to self-monitor blood and urine, and how to react to test results?
- What are the signs of low and high blood glucose levels, what is ketosis, how to prevent these conditions and how to treat them?
- What should you do if you get sick?
- What are the complications of diabetes, their treatment and prevention?
- How to behave correctly in different situations, is it possible to travel and drink alcohol?
- How to deal with problems of employment, obtaining a driver's license, insurance?
Representatives of the “Societies” from different cities constantly gather for seminars where they exchange experiences and discuss new pharmaceutical products and treatment methods. Problems in the field of protecting the rights of patients with diabetes are jointly considered and ways to solve them are sought.
The International Diabetes Organization, represented by President Michael Hirst, calls for increased detection of this terrible disease in the early stages, even in children. During this period, with the help modern technologies, there is an opportunity to stop it. If possible, create more societies for people with diabetes. According to the president, without such prevention, both children and adults are deprived of the right to a healthy life.
Reviews and comments
Margarita Pavlovna- 13 Mar 2019, 12:34
I have type 2 diabetes - non-insulin dependent. A friend advised me to lower my blood sugar levels with DiabeNot. I ordered it online. Started the appointment. I comply a loose diet, I started walking 2-3 kilometers every morning. Within two last weeks I notice a gradual decrease in sugar on the glucometer in the morning before breakfast from 9.3 to 7.1, and yesterday even to 6.1! I continue the preventive course. I'll write about my successes.
Olga Shpak- 14 Mar 2019, 12:19
Margarita Pavlovna, I’m also on Diabenot now. DM 2. I really don’t have time for a diet and walks, but I don’t abuse sweets and carbohydrates, I think XE, but due to age, sugar is still elevated. The results are not as good as yours, but sugar hasn’t gone beyond 7.0 for a week now. What glucometer do you use to measure your sugar? Does it show you using plasma or whole blood? I would like to compare the results of taking the drug.
“Why do I personally support Putin? For example, because now salaries are regularly paid and I can walk around the city with a girl without fear of being shot in the head.”
Great scientist
Expert assessment the work of the organization of patients with diabetes mellitus was given by doctor historical sciences Ivan Konovalov. The first of the six pages of the conclusion describes the main activities of the society - meetings with patients, annual patient conferences, preventive actions To World Day diabetes mellitus The historian cites a certain bank statement (the name of the bank is not indicated), according to which in 2014-2016 the Saratov organization received 645.5 thousand rubles from Russian “branches of foreign pharmaceutical companies.” It also indicates what the money was spent on - holding a patient conference, decorating an exhibition, sporting competitions for diabetics, etc.
The expert lists articles in the Saratov media devoted to the problems of diabetics (in most of them the organization of people with diabetes is not mentioned at all), and concludes: “So, the Saratov regional public organization of disabled people with diabetes transmits information to foreign partners about the so-called “ pain points» region, especially in the provision of medical care population, which can be used to inspire protest sentiments in society. In addition, SROOIBSD creates the preconditions for discrediting authorities, unreasonably declaring the insolvency of the relevant structures of the regional government in the field of supply, distribution, and import substitution medicines among patients with diabetes, which can be qualified as political activity.”
As stated on the website regional office « United Russia", Doctor of Historical Sciences Konovalov heads the party project " Civil University" He is included in the list of candidates for the Saratov Public Chamber compiled by regional Duma(according to local law, deputies form a third of the composition of the OP). Ivan Nikolaevich works at legal academy at the department of history, political science, sociology and service. Doctoral dissertation defended in 1999 on the topic “The role of peasant cooperation in the history, culture and social movement of Russia late XIX- beginning of XX". The professor not only teaches national history, but also disciplines called “Political Technologies”, “ Political history Saratov Volga region in modern times", "Technologies for designing stability", etc. Judging by the list of scientific publications, the scientist is interested in methods of combating drug addiction and “color revolutions.”
In 2016, Ivan Konovalov already participated as an expert in the Engels case public organization“Socium”, which was also suspected of belonging to foreign agents. "Society" organized by psychologists from municipal institution“Positive”, has been involved in HIV prevention since 1998. The organization had a volunteer group that included, among other things, former drug addicts. They distributed free disposable syringes and condoms to drug users to stop the spread of infection. In the spring of 2016, the Engels prosecutor’s office conducted an inspection and found that “the organization’s activities have signs of political”: “SROO Sotsium was engaged in the formation public opinion on questions public life and subsequent communication of this opinion to the general public and government authorities.”
Members of the organization were accused of conducting sociological surveys among drug addicts and HIV-infected people and statistical analysis information.
“On the one hand, they don’t engage in politics - they don’t picket, don’t hold rallies, don’t demand the resignation of the government. But they can be called participants in a hybrid war against Russia, the goal of which is to change political regime in our country. Hybrid warfare involves the destruction of the foundations of traditional culture, family values, interprets human rights in a unique way. The policy of “Society” comes into conflict with the policy of our state. The Ministry of Health and the Federal Drug Control Service call for healthy image life, and “Socium” implements the ideas of late liberalism, which maximizes the rights of people at risk - drug addicts, prostitutes, sexual minorities“, Ivan Konovalov stated to the Saratov news agency Vzglyad-info.
According to the historian, the Engels organization received from Global Fund to combat AIDS, tuberculosis and malaria 1.3 million rubles. The reprisal turned out to be short: the fact that the Engels prosecutor’s office had claims against Sotsium became known on April 7, and a week and a half later the court declared the organization a foreign agent.
Total in Saratov region Three organizations were recognized as foreign agents: before “Socium”, back in 2014 the sociological “Center” received this status social policy and Gender Studies" and the environmental "Partnership for Development". All three “spy” NPOs self-destructed. The reasons were the impossibility of cooperation with government agencies, as well as the costs of complicated financial statements and large fines.
Sweet kids
“Until this week, Novorapid was not on a free vacation, only for money. Moms in our Viber group complained that endocrinologists don’t even prescribe the drug, saying that you fill out a prescription at the pharmacy for deferred care, and the clinic will be fined for it,” says Saratov journalist Anna Mukhina. Her four-year-old daughter was recently diagnosed with type 1 diabetes.
In the event of supply disruptions, endocrinologists in clinics find themselves in a vulnerable position. For not filling out a prescription, the prosecutor's office can crack down on them. If it is issued but not purchased within ten days, you will be fined by the Compulsory Medical Insurance Fund. In case of formal complaints from patients, the doctor risks losing incentive payments for his inability to work with people.
Anya was lucky with the endocrinologist - the doctor prescribes insulin “with a reserve”, so the parents were able to put aside “as many as eight penfils” for a rainy day: “Situations can be very different: if a person gets sick, the need for insulin increases. A child may be very hungry, he may go to a birthday party with sweets - this is life. Some people come across harmful endocrinologists who calculate insulin literally drop by drop: this amount should be enough for you for 21 days, and if the drug runs out a day earlier, it’s your problem, and don’t you dare ask!”
In total, 82 thousand people suffer from diabetes in the Saratov region. Of these, only a portion have disabilities, that is, they receive medications from the federal budget. The rest are the concern of empty regional treasuries.
A diabetic’s path to subsidized medications begins in the hospital, where the patient is diagnosed. “Everyone at the Mirotvortsev Clinical Hospital is wonderful - from the doctors to the nurses. Doctors are constantly learning, monitoring new treatment methods, and do not intimidate parents,” says Anna. — After hospitalization, the patient with the diagnosis goes to the local clinic and feels the difference. The queues alone are worth it. By law, my child has the right to go to the appointment without waiting in line. We tried to use this right once. We heard a lot of things from other parents, as they told us, “why do you come here, drag your own dirt.” Another time we decided to sit in line like everyone else. We sat there for two hours, and my daughter’s sugar dropped so much that nothing could raise it, and hypoglycemia dangerous thing for the nervous system."
You must pre-register for a medical and social examination. Anna and her daughter arrived at the appointed time, were second in line and spent two and a half hours outside the office door. “There is a chair there that you can sit on. What other conditions for children, I beg you! - Anya waves it off. “Although this is the children’s division of ITU.” The procedure itself took 15 minutes. The girl was given disability for only one year, after which the campaign will need to be repeated.
Disabled diabetics are entitled to free needles for syringe pens. As Anna says, official needles 8 millimeters long “are suitable for well-fed adults, children need “fours.” Parents buy them themselves. A box of needles (100 pieces) costs about a thousand rubles.
The situation with syringe pens is even more absurd. For a diabetic child, they are given a free reusable pen in increments of 0.5 doses of insulin, which allows you to adjust the amount of the drug for the baby. But insulin is dispensed not in the form of a cartridge, but in the form of a disposable pen in increments of 1 dose, in which the penfil is tightly sealed.
“What if a child needs to be injected with 1.5 doses, but the disposable pen does not allow them to be measured? We cut off a disposable pen, take out the cartridge and insert it into a reusable one,” says Anna.
“I don’t know why insulin is purchased in such an inconvenient form for use.”
“This year, our Sweet Kids group sent a bunch of complaints to Roszdravnadzor about test strips for glucometers. According to the federal standard of care for children with insulin-dependent diabetes mellitus, a child is entitled to 750 strips per year. In reality, we need two to three times more, but they don’t even give us that!” - says Mukhina. The price of the strips depends on the type of glucometer. For the device used by the interlocutor’s daughter, a package of 100 strips costs at least 1,500 rubles. This is enough for 10 days.
Many parents install a monitoring system for their diabetic children - this is a sensor on the shoulder or on the stomach, which, using a tiny needle immersed in the subcutaneous tissue, measures the sugar level every five minutes (this allows you to avoid pricking the baby’s fingers again). The transmitter sends readings to mom's phone. “This makes life a lot easier for parents. You can constantly monitor your sugar in real time, find out why the level is rising when it usually happens, determine the reason for the body’s reaction, and adjust the menu and insulin dose. Only thanks to monitoring does my daughter go to kindergarten, because the facility’s nurse does not have the right to measure sugar,” says Anna. The system costs from 30 thousand rubles per German model and from 60 thousand for American. This equipment is not certified in Russia, although the paperwork has been going on for several years. Parents are forced to purchase equipment semi-underground through friends in Europe.
Federal budget allocates quotas for installing insulin pumps for children. As Anya says, “they promised to call us in March, when the queue will open.” Also needed for the pump Consumables in the amount of 3 to 10 thousand rubles per month, but the regional budget does not pay for them. “They tell us: you have a child’s pension. The pension is accrued not from the onset of the disease, but after an examination in a hospital with a diagnosis, after passing the medical examination, from the moment of submitting an application to the Pension Fund, says Anna. — They pay about 12 thousand rubles. If the mother does not have a flexible schedule, she will not be able to quit her job if she has a disabled child. Compensation for care is 5.5 thousand rubles.”